On July 9th and 10th, Good Dogg Beverage took part in a virtual event held by our partner, KIF1A.org. The purpose of this event was to host a conference with the goal of bringing together the community and enlightening them with new studies, future therapies, and inspiration to keep fighting for a cure.
Who KIF1A Is
KIF1A.org is an organization that aims to improve the quality of life of families affected by KIF1A Associated Neurological Disorder, KAND. KAND is a rare degenerative genetic disease caused by mutations in the KIF1A gene. This condition affects several areas of the brain and the body. Through this organization, KIF1A.org uses its resources to drive research initiatives in hopes of finding a cure. KIF1A is patient-focused and spearheaded by parents of children who are affected by this order.
A Look Into The Conference
This year, KIF1A.org held a virtual event due to the ongoing COVID-19 pandemic. However, this did not deter the community from logging into the KIF1A conference on both days. The turnout was around 100 people viewing the event online.
The conference had several speakers, including Dr. Wendy Chung, M.D., Ph.D., an ABMG board-certified clinical and molecular geneticist. A few therapeutic development collaborators included Omid Karkouti, MS, Co-founder and COO of Rarebase, and Douglas Chapnik, Ph.D., CEO, and founder of BioLoomics Inc. also participated in the conference. The discussions focused on current best practices for individuals affected by this disorder, as well as further seizure and medical care options. Guests of the event were able to hear about the future outlook of proposed therapies that rare disease drug companies are currently researching.
Good Dogg Beverage Speaks
Andrew Parry, Director of Marketing and Communications for Good Dogg Beverage, alongside Luke Rosen, Founder and Board Chair of KIF1A.org, introduced the Good Dogg brand and its partnership with KIF1A to the community during the conference. Andrew followed up the announcement with an inspirational discussion about continuing to drive forward and fight for children diagnosed with KAND, as well as those diagnosed in the future. Andrew left the viewers with a message, don’t give up the fight to find treatment options. He concluded with the final words, “Keep going, don’t stop fighting.”
If you’re interested in learning more about one of our partners, KIF1A, please visit their website. We also have other information on our website about our non-profit partnerships. To inquire further about how Good Dogg Beverage continues to help the community with its Leverage the Beverage campaign, please send us a message. Furthermore, if your non-profit organization wants to partner with us, please send our team a message at firstname.lastname@example.org.